And now we return to regularly scheduled programing

First I need to apologize to those who have donated and have been checking to see where we are on our earnings for Daniel's service dog. I have not updated anything in awhile and that's partly due to the amazing summer weather we have been having this summer. (In Alaska it's enjoy every good day because there usually aren't this many of them!) It has been wonderful spending so much time at parks and outside. The other reason for not updating is  that this has been a very difficult summer for all of us. Daniel has experienced significant regression in his behavior to levels never seen before and this has placed a huge stress on all of us. We've had to up his medication that regulates his mood twice and he's back at adult levels. Reagan has also been acting up due to this so I have had my hands very full just trying to not land in the nut house myself.  But the good news is that we have continued to earn and I will try and update the banner in the next couple of days but our current total for the dog is.....

 $4312!!

We have also come to a fork in the road for Daniel. He has experienced chronic constipation since he was about 17 months old. We've now tried all the medications that there are out there for it, changed his diet and tried alternative medicines. For one reason or another none of them work. Because of that he is probably going into surgery this week to have a cecostomy tube put in. This is a tube that is the same as a feeding tube that they insert into the stomach but it will instead be inserted into his upper intestine and it will be permanent but can be taken out at at later date. We will flush it out every night in order for him to have a bowel movement. I'm told it takes about 45 mins each night. The surgeon is talking about doing some other things as well. We meet with him in the morning to find out what's going to happen for sure. Daniel will be in the hospital for several days so we are flying my Mom up to spend a week with us to help care for Reagan.

In other news, because this was such a difficult summer we have decided that Daniel will be going to public school this year and I will be homeschooling Reagan to give her some special time with me and give both of us a break. Daniel was able to get into a charter school that I'm hopeful will be the right fit for him.We are hoping that a new ABA (Applied Behavior Analysis) will be able to take him next month and that will also be a huge help for us and the school.

I'm really hoping that I will be able to post a few things that we were able to do this summer. Because we did do some fun things and it wasn't all bad.

Daniel's Story

Just a little warning- I'm hijacking our family blog for a little while to do a little fundraising. We decided after quite a lot of research and investigation, that we wanted to get an Autism service dog to help Daniel. I wanted to take a blog post and explain why we want a dog to help Daniel and for those who don't know Daniel or don't read this blog regularly (or at least as regularly as I post), tell his story.

**Note** Due to technical difficulties with Paypal, please click the button that says Just Give on the Arctic Paws website to donate online. Paypal should be back up soon. Thanks!

We have found a fabulous non-profit that trains dogs here in Alaska and their mission is to get dogs to the people who need them for an affordable price. They are asking for only $5,000. All other dogs I have seen are at least $10,000 and some go up to as much as $40,000 and it would still involve a 1-2 week trip out of state for training which in Alaska is a big deal. These are fabulous people who are just trying to help others. If you feel that you could donate any amount we would greatly appreciate your gift. You can donate online at Arctic Paws For Service or mail it to:

Arctic Paws for Service

 LINWOOD FIEDLER
PO BOX 135
WILLOW, ALASKA 99688

Note on your donation that it is for Daniel Petersen. All donations are tax deductible as it is a 501(c)3 organization. Any businesses that donate $100 or more will have their logo or name embroidered on the service vest of the dog. The larger the donation the larger the logo! Just Email me with the name, or digitized logo.

Daniel's Story 

Sorry, this might be long...

Paul Daniel Petersen was born into the world 2 weeks past his due date. After I was given an epidural his heart rate started dropping and I was taken in for an emergency C-Section. When they got him out he had aspirated (breathed in) mechonium (poop) and his apgar scale ratings were really low (a test they do at birth). I didn't get to hold him and barely caught a glimpse of him until he was 5 hours old. He was doing all right by that time but then we had to teach him how to suck so he could eat as he had 3 different sucking patterns and only one of them was right. That began his journey.

The next 3 years he met most developmental milestones but he didn't finish them. He learned to talk and walk, but you couldn't understand most of his words and he trained himself when going on a walk to fall towards the grass as he frequently fell. He was also sick a lot. He not only got regular colds but contracted Whooping Cough, and RSV 3 times the last of which he spent a week in the hospital for, this led into Asthma. He also developed chronic constipation which he has struggled with since he was 16 months old.

When he was about 2 1/2 the kids and I moved in with my mother in law for 5 months while Paul completed new job training before moving to Alaska. At that time he kind of had an emotional melt down that never really ended. I talked to his pediatrician about it and he said, "You don't want to take him to a Psychiatrist, they'll just medicate him." Yes I didn't want him medicated but I knew this wasn't normal. I asked about Daniel falling down all the time he said, "kids are just clumsy". We also had his speech tested and they said, "He's just on the edge of needing speech therapy." I said I'm his Mom and I can't understand at least 70% of what he says. So we did a little speech therapy and just left everything else and moved to Alaska.

He was about 3 1/2 when he started getting up for the day at between 2 and 4am, no naps, and still falling apart emotionally all the time when I said enough is enough. I went to his new pediatrician and he sent us to a psychiatrist. The first diagnosis was an unspecified mood disorder which they medicated and it did help some. Next came an ADHD diagnosis and more meds. I, on my own had sought out a Play Therapist and had him going to her and that helped too, but I still felt like that wasn't quite everything that we were missing something. She sent Daniel at the age of 5 to a Neuro Psych, and suddenly a lot of things started making sense. She diagnosed Daniel with Autism, co-ordination disorder, speech disorder and a host of other things. It was a hard thing to hear but for me also a relief.

Daniel started in with Occupational therapy, Physical therapy, Speech therapy, eventually ABA (Applied Behavior Analysis) therapy, and social skills groups whenever we could. Since then the diagnosis', have grown: low muscle tone, Scoliosis, near sighted... None of the things he has are extreme but just enough to give him problems and make him have to work harder than the rest of us to do normal things. At almost 7 years old he does a lot better and he has made HUGE strides with the therapies we have done.

If you've made it this far, you're probably wondering what a service dog will do for him and what does a Autism Service dog do? Here's some of the things we are hoping our dog will help him do:

-Give a warning bark when he leaves his room at night, so we can intervene and make sure everyone is safe. Mom can get a good night's sleep and get rid of the dark circles under her eyes. (At least until Reagan becomes a teenager.)

-Reduce anxiety and frustration which would enable us to reduce his medications.

-Provide physical stability and support as he walks as well as safety as the dog will stop before crossing the street enabling us to make sure no cars are coming.

-Give Mom a break! I've always said that if Daniel could he would climb right back in my body and stay. I am his security. We are hoping that some of that can be transferred to the dog and it will free me up to be able to spend more time with Paul and Reagan.

-The dog will track and retrieve Daniel when he runs or wanders away.

- Decrease what is called stimming. The dog will be trained to stand in front of the cupboard doors that Daniel likes to slam over and over again so that he can't do that.

-Give Daniel a chance to make friends. The dog would probably be Daniel's first real friend, and we are told that making friends which is hard for Autistic people to do, becomes much easier as other people are drawn to dogs and they want to know about them.

-Helping to remind Daniel to go to the bathroom. This has been a real issue for us and there are lots of his issues that play into this. Anything that decreases the amount of laundry for me is HUGE!

These are just some of the benefits that we are hoping to achieve. Thanks for taking the time to let me tell you just a little bit about our wonderful pirate and lego loving son!

I Must Repent! (and Christmas 2012)

So it's been about 6 moths since I've been on here. Yes, we are alive up here in the wilds of Alaska. It's been a long and a strange winter. It's been warm when it shouldn't be and cold at odd times. Currently it's been below 10 degrees in the mornings and I was just told its going to snow in the morning. Shouldn't be surprised. It is Alaska.
Christmas this year we had the privilege of Grandma Lois joining us. I don't think she will ever come back though as a week after she got home to UT she still couldn't get warm.

We took in a Aces Hockey game with her, which she said was for the rednecks.

 Then later that night we watched Paul play a hockey game until we were all too cold and went home for the night. Most of the pictures were really bad these are the better ones... Next time someone else is in charge of the camera.

 We made Christmas sugar cookies and had the missionaries and friends over for Christmas Eve and Christmas Day. One missionary in particular was just a little special to Calleen. Elder Higley is from her parents ward in Missouri and he is the same age as her brother Daniel. So it was special for her to be able to share Christmas Eve with him.

One of the things Calleen got for Christmas was a noodle maker which the kids like to help with. Yummy spaghetti with whole wheat noodles! I've been wanting one for years.

September 29th

 What were you doing on September 29th of this year? I bet you weren't playing in snow! We got our first snow of the year VERY early this year.

Normally snow doesn't come until the end of October or first of November. It didn't stick and we've had a bit more since then but nothing to stick long. Any day now the snow will start and it won't be gone until spring...

Calleen's Newest Creations

I have been very busy crocheting lately. This pattern is called the Savanah Belle dress. I made a matching one with opposite colors too, and I think it was my favorite of the two as the purple was such a beautiful color. I forgot to take a picture of before I gave it away though. Hopefully the person I gave it to will oblige me with one with her baby in it.

This one is called the Pemberly shawl. It took me about a year to finish. I did take it out a lot as Paul can attest to my frustrations, but moving and other projects just got in the way of finishing it. It's finally done though and I breathed a huge sigh of relief.
Coming soon... This year's birthday dress for Reagan. She's totally psyched.

Paul Got a Bear

If you follow me on Facebook you already know this, but for all those not on Facebook and in my continuing quest to catch up with blog posts, here is Paul with the Black bear he shot last month. I told him he can now cross that off his bucket list. He couldn't have been prouder I think by the look on his face.
 He's having a bear rug made of it (to the tune of $1000) and we gave some meat away and froze some. About half of the meat we kept we had made into peperoni sausage.
Not being a fan of bear meat. It's not bad tasting if you take off all the fat but it has so much gristle I'm just not keen. So I usually make it when I'm going elsewhere for dinner. But the pepperoni- now that stuff is good! If he ever gets another bear, that's what we are doing with all of it. Come visit and we'll feed you some bear meat.

Project for Dad and Son

Daniel has been driving us crazy asking for a Pirate boat. Paul decided to make one for him after he couldn't take the incessant requests. This was a joint effort and still continues to get things added to it. The steering wheel really turns and the spindle that holds the thread for the anchor does too causing the anchor to drop. Daniel added the ladder from his Legos and made the sails. We are still deciding whether to paint it or leave it. But they sure had fun making it!